It was a parent’s worst nightmare. Sloan St. James was born a healthy, bouncing baby in April. But her parents, Sarah and Chris St. James, knew there was something wrong when their baby girl remained jaundiced for months after her birth.
“I brought it up to our pediatrician and they weren’t concerned about it. But [Sloan] started getting a little belly and her belly was getting more swollen than the rest of her,” Sarah, 33, tells PEOPLE, adding that this prompted her and Chris, 33, to take Sloan for another check-up. “I wanted to have peace of mind that everything was okay. But when I took her in on August 8, the doctor that saw her was very concerned.”
Doctors soon discovered that Sloan has biliary atresia, a rare, life-threatening liver disease in which the baby’s common bile ducts are blocked or damaged.
“It was the worst time of my entire life. It …